Sunday, March 11, 2007

Catching up...

Okay, so we've been REALLY busy with life lately - so busy we haven't had time to post. But, that's a good thing, right?!?

Since the last post Sophie has completed her second round of chemo and is now awaiting nuclear and CT scans to see what's left of that pesky tumor. We were scheduled for this past week, but we had another little run-in with croup. Harken back to last June when we spent a couple of days in the pediatric intensive care unit for the same illness. This time it was, thankfully, not as intense! However, the first night, Tuesday, gave us a bit of a scare - enough so that we called the paramedics. Sophie was breathing much better once they arrived and we decided to drive her ourselves to the GUH emergency room for treatment. By 6am she was asleep in the ER and we awaited the clinic opening for an appointment scheduled for that day. The nuclear injection was scheduled for that afternoon and the scans for the following day, Thursday. Sophie needs to be sedated for the lengthy scans and any compromise to her breathing and airway is risky, so we're rescheduling for next week.

Next week also begins another chapter in our progress. Mom returns to work after more than seven months. There are still clinic appointments to attend to, physical and occupational therapy, and the ongoing possibility of hospitalization for fever or other complications from Sophie's central line. But, this is a step in a positive direction for everyone, and hopefully a sigh of relief for those that have been covering for such a long time. If you're reading this, thanks you! - you know who you are!!!

Zach is enjoying school, and started his ADHD meds a couple of weeks ago. We're still trying to figure out what does of what drug is best, but we are definately seeing improvement in his ability to control impulses. And, we still have a very creative and energetic boy, so our greatest fears of medicating the Zach out of Zach are thus far unfounded. Whew!

Well, there are a ton of pictures to post, but unfortunately, no time to decide which ones and upload now. Hopefully next week. We just wanted to post a quick update and hello to let everyone know we're still hanging on and in some respects even moving on!

Love and peace to you all!

1 comment:

Sarah DeJong said...

"Hey Hey" to the Soussi-Tanani Family-

I'm sorry that I've been out of touch for a while, but I'm now finally settled in Phoenix. Phoenix is nice but not quite the same as Georgetown.

Sounds like everything is moving a long nicely with the exception of a few minor set backs. Hope all the scans go well and there is nothing left to find!

Jsut wanted to say "Hi" and check in. Miss you all.
Sarah DeJong