Friday, July 14, 2006

Everyday is a winding road...

Yesterday Sophie completed one of the final tests, a nuclear test called an MIBG. We also received the final, definitive biology report from a clinical trial we entered. Both test have curved our path once again. The biology report showed that the tumor is actually a ganglio neuroblastoma. The MIBG confirmed this finding and showed an additional 'spot' in an adrenal gland. This obviously not the news that we wanted to hear, but it is a definitive diagnosis and we can now proceed with treatment. Today and early next week Sophie will undergo another battery of tests to ensure that she is in good enough physical health to withstand the chemotherapy.

We will meet with the Doctors again today to map out her treatment plan and set a schedule. We will also discuss if we will continue to pursue diagnostics and treatment for the underlying OMS at the center in Illinois. We'll post more as we know it. Keep those Prayers coming, we're not through this yet, but we do know that this too shall pass!

Here's a picture from this morning that shows how great Sophie's spirit remains. And, not to be overshadowed by his little sister, Zach lost another tooth - check out his new gap!


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